Update on Nadia

I’m exhausted, so cheating and posting a pic (my Facebook status) that sums up what we know about Nadia’s brain for the time being. 


I feel like this is an awful, horrible dream. But alas, it is not. Is it really too much to ask for, for this to be an easy NICU stay? I guess there really is no such thing. I’ll update again when I’m not so tired. 

There were positives today, we got to hold Nadia!! Here are a few pictures!


Oh, and those of you with high lipase levels, do you have any tips and tricks to share regarding freezing your breast milk? I made 25 oz today and Nadia gets about 2 oz a day, so already need to start my stash. I know you have to somehow heat it to a certain temp before you freeze it, right? In batches, each pumping session? What did you find easiest?

And if today wasn’t stressful enough with the sad news regarding Nadia…  Eric’s dad passed away. He got the call just as we were walking out of the NICU to come home. Thankfully Eric said his goodbyes to his father last night. I think today goes down as one of the hardest for me and Eric. Tomorrow shall be better 🙂 I hugged Nora a little tighter as I rocked her to sleep tonight…  Life is so short and fragile. 

14 thoughts on “Update on Nadia

  1. Definitely a rough day for all of you. Don’t stress about scalding right now. Excess lipase only affects taste, the milk is still fine to drink so for a preemie who’s mainly being tube fed, don’t waste time right now. For the future, you’ll want to test your milk every couple hours to see when it turns. If it can go 24 hours, then you can scald it all at once. I used this method: http://simplyrebekah.com/2010/05/03/excess-lipase-scalding-breast-milk/

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  2. Hi! Much love to you and your family. I have followed you since your journey through IVF after my own fertility struggle. I had high lipase and had been exclusively pumping due a latch issue. I ended up donating the 800 ounces in my freezer and then starting scalding. All I did was put all of the milk from the day in the pot, turn it on and watch it so closely. For a while I used a thermometer but then I quit because it was just easier to watch for the first bubble. When the first few bubbles happened I pulled it off and put the pot in large mixing bowl of ice. I usually put the whole bowl in the freezer and once it had cooled put it into bags an froze!

    Good luck!!!

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  3. What lovely photos — the one of you and she gazing at each other will be one to treasure for years to come!

    I’m so sorry to hear about your father-in-law. There is no easy way to handle so many stressful things all at once.

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  4. I’m so sorry to hear that you’re going through such a stressful time, and with Eric’s dad passing too. I had felt confident that as Nadia was breathing on her own and managed to stay inside longer than Nora that this NICU stay would be easier. I really hope that she gets bigger and stronger soon and you get lots more cuddles and there are no serious long term side effects of the bleed. Thinking of you.

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  5. My goodness. What a day. I am so very sorry for Eric and all of you. And I am so sorry about Nadia’s news. I really hope that they are just consistent with birth and cause no issues. Avani had hemorrhage a behind her eyes and we still have them monitored. It’s so scary but thankfully the only impact will be to her peripheral vision. I am thinking of you guys constantly and PLEASE don’t hesitate to reach out for help.

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