Can you believe it’s been 4 weeks since Nadia’s birth? Seriously, time is flying… But why have I only lost 14.9 lbs in the past month?? With Nora the weight fell off! I guess I need to use our jogging stroller for more than trips to the mall…
Eric and I visited Nadia today and to my surprise, it was a really nice, calm, pleasant visit. No bad news today. Although I feel like now that I typed that the phone is going to ring from the NICU. Please God, no more bad news calls in the middle of the night.
We are getting to the point where we can start checking off discharge goals, so I thought I’d list those out, although these are more for me than you all reading 😉
Temperature – Just today the nurse told us that Nadia’s temperature has been normal even with her warmer bed at the lowest setting. Therefore, she is ready for an open-air crib. One goal complete!
Oxygen – Nadia has been off oxygen for several days now, I actually can’t remember when they removed it. She must have no ‘spells’ (meaning drop her oxygen level below 90%) for 7 days to meet this goal. I’m not worried as I don’t think she’s had any spells since breathing room air.
Heart Rate – The goal for this is no spells for 7 days as well, meaning not drop her heart rate, I think the cut off is below 60 bpm, but I’m not for sure on this. The past few days she’s been good, so I assume that by the time her other goals are met this won’t be an issue. I hope.
Speaking of her heart, her echo came back normal and they started her propranolol today. I’m not sure there is much more for follow-up on this until we are out of the NICU, as I think we will have monthly checks with one of the pediatric cardiologists. For now though, all should be well on the meds.
Weight – There is no set weight required for discharge, but Nadia must be gaining almost everyday, which she is and has been since birth. Today her weight was 5 lbs 9 oz, which actually seems huge to me, since Nora was discharged at 4 lbs 15 oz.
Feeding – All feeds must be taken by mouth, either bottles or breast. The nurse said this is really our focus right now, as to date, all of Nadia’s feeds have been by tube. I feel like we’ve had so many set-backs with holding feeds due to residuals. Ugh. Again today I really wanted to try breastfeeding, but we needed to leave before she was due for a feed. Her tube feeds are on a pump now, and she is still having residuals, but it sounds like they aren’t as concerned as they have been in the past. I’m really hoping we can try breastfeeding tomorrow, and I told them they could try a bottle with her tonight for the first time. I want her to take to breastfeeding, but since I’m there so seldom, and I really want her out of the NICU and home, I guess I’ll have to accept bottles. Hopefully she doesn’t refuse the breast after having some bottles…
Vision is not one of the discharge goals, but I’m pretty sure this week will be her first check of weekly checks while in the NICU and then I forget how often they check vision after discharge. I know in December we have Nora’s last check… I assume Nadia’s eyes will be immature now, as expected, but hopefully no other issues.