Behind again…

Maybe the titles of my posts should just be the dates from now on, as I’m always tempted to call them, Catching Up, as that’s all I do these days…

I’m pretty sure I missed several weekly pictures of Nadia. Well, I didn’t miss them, I took them, and posted them in the sidebar, but didn’t write specifically about them. Here is the most recent from last week…

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Nadia is still quite a fussy baby, but we’re learning how to make her a little happier. For one, MiraLAX is our new best friend. Our pediatrician suggested we add it to her bottles, about 1/2 tsp over the course of 24 hours. I actually make 20 oz of milk at a time and add it to that. She now goes more regularly and seems a bit happier overall. She’s having more periods of wakefulness during the day, and sleeping up to six hours at night. Which sounds nice, except that she wakes when her pacifier falls out of her mouth, so I still only get maybe an hour of sleep at a time. And throw in Eric snoring, Kona wanting to go outside, and Nora waking every now and again, well, I’m still tired. Always tired.

Nadia is starting to be more ‘social’. She coos and smiles when spoken to, will follow people and objects with her eyes, can hold a rattle, but won’t yet reach for it on her own. Maybe soon. We need to work more on tummy time. I’ve been pretty bad with it, as it’s hard to leave a baby on the floor with a toddler and large dog just waiting to trample her. I assume Nadia will roll much later than Nora did for this very reason.

Speaking of development, Nadia is right on track according to the high-risk follow up group in Iowa City. Their only concern was her weight, now 10 lbs 4.5oz, which is only 10% for her adjusted age. When we left the NICU she was closer to the 50% curve for adjusted age weight, hence their concern. We have another weight check at the end of the month and we’ll see if they want to increase calories at that point. We’re still feeding Neocate, which is meant for milk protein allergies. When Nora’s immunologist called last I snuck in a few questions about Nadia… Long story short, unless we saw blood in Nadia’s stools, enough that it was clearly visible (which is wasn’t) when she doubts Nadia is allergic to the proteins in milk. Dr. Bayer said it’s a very rare allergy, and her guess is Nadia has colic. Recommendation was to add milk back into Nadia’s diet around 9 months actual and see how she does. Without writing a book on just this topic, lets just say I feel awful that I gave up breastfeeding when I probably didn’t have to… But, as we all know, life doesn’t always turn out how we want or expect.

Next steps with Nadia will be checking in with cardiology (SVT) and neurology (brain bleed and lack of oxygen at birth) in the next few months. Nadia also sees urology for urinary reflux, but I don’t think we see them until she’s almost a year old. I’ll post updates from the doctors when I have them.

Moving onto Nora, although I’m sure I could write about Nadia for hours and hours…

Nora is 21 months, and some days, a little ball of (too much) energy.

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Nora has more teeth, but refuses to let me count. By glancing I’d say her mouth is full, but I know there must be more coming. Nora also has more words, so many these days that I can’t possibly list them all. Her favorites are: sissy (sister), cheese, appa (apple), juice, NO, tree, bye, hi, shoes, socks, chair, car, dog, Kona, baby… There are just too many to list. She still says, ‘oh boy’ all the time, and usually when it’s appropriate. Her energy seems to be non-stop some days, but every now and again she still brings her pacifier and blanket to me on the couch and wants to snuggle.

Nora saw the high-risk follow up team the same day Nadia did, and they had all great news for Nora. They were happy with her skills in all areas, ranking her well above 21 months, even though she is really only 18 months corrected. The immune group was happy with her results as well, as her IgG, is now about half what the normal is for her age. I know, that doesn’t sound great, but it used to be about 1/10 the normal, so this is progress. And she still hasn’t really been sick, knock on wood. Eating is still my biggest struggle with her, as she is just 20 lbs. Her favorites are still chicken nuggets, mac and cheese, blueberries, apples, and all kinds of cheese. Its getting harder and harder to make meals out of just a few items time and time again.

I still wonder most days how I got so lucky to be the mom to these two perfect little girls!

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