First I want to say, I really, really like our pediatrician. And while she isn’t being unhelpful when it comes to my concerns about Nadia, she doesn’t seem particularly helpful either.
Last week I specifically asked Nadia’s pediatrician to run a few blood tests…
- ASO Titers – Antistreptolysin O is a blood test to measure antibodies against streptolysin O, a substance produced by group A streptococcus bacteria. Antibodies are proteins our bodies produce when they detect harmful substances, such as bacteria
- anti dNase B – (antideoxyribonuclease-B antibody) is one of the most common of several antibodies that are produced by the body’s immune system in response to an infection with group A Streptococcus (strep infection). The anti-DNase B test measures the amount of this antibody in the blood.
Basically we were trying to see if strep, the cause of PANDAS, is overloaded in Nadia’s body. The nurse emailed me that both tests came back in the normal range, although I find it weird she wouldn’t actually tell me the exact level. But… this doesn’t mean Nadia doesn’t have PANS, as that can be caused by a variety of infections, including Lyme disease, mononucleosis, mycoplasma (walking pneumonia) and the flu (such as H1N1) and even mold and yeast.
Nadia’s pediatrician seems as if all is well now, not investigating symptoms any further, just wanting to continue occupational therapy. I still haven’t heard a word from the University of Iowa about our referral appointment there which was submitted months ago now. So… I’m taking matters into my own hands, even though everyone thinks I’m crazy, and maybe I am, but I need more answers. There is a physician in Des Moines, IA, not that far from us, that is a PANS/PANDAS specialist. But we need a referral. So… I sent a mychart message and I’m hoping our pediatrician thinks it’s at least worth talking to this specialist about Nadia.