Nadia finished her 30 days of Zithromax on Monday and we are still tapering down her steroids. If you asked me on Monday how she was doing, I would have said not much different. Maybe washing hands less, a few less epic meltdowns… But other things are worse. She is still refusing underwear or pants and thus still not attending preschool. She is extremely defiant, her answer to everything is, I don’t want to! Today and yesterday though she seems a little more pleasant. Willingly took her medicines, slept better last night, goes to the bathroom alone without screaming, I’m wet. Although still holds herself like kids do when they need to use the restroom.
Yesterday we had a follow-up with the PANS specialist we saw in Creston, IA. Her recommendation was to switch to a new antibiotic, Augmentin, and add in a very dose of a medication usually used for drug overdoses, Naltrexone. She said it is sometimes used for auto-immune issues.
Then, last night I was chatting online with a Naturopath, Herbalist, and Nutritional Therapist in Australia… I know, crazy. Right? Her son had PANS which she successfully treated naturally, and now she has started her own practice treating other such PANS children. Check her out here. She gave me a treatment plan and some tests she wanted to do… but asked I not share the details, why I’m not sure. If that weird? This morning I ordered the supplements and the tests, but now I’m at a crossroads so to speak. I can’t very well continue with the PANS specialist who is an MD, and also follow the Naturopath route of treatment. Thus, I’m confused.