Nadia was doing so, so well since she went back to school after Christmas break. And while the doctors told me to expect setbacks, I guess I kind of thought, that won’t happen to us. Well, it did. And I’m so very sad. And discouraged. And scared.
Last Tuesday we chatted with one of Nadia’s doctors and it was decided that we should be more aggressive with killing off some yeast that showed up in her gut reports. Yeast in her gut is one of Nadia’s many issues. We’re trying to tackle one at a time. Yeast in her gut leads to leaky gut, which can allow bacteria into her blood and then brain, which can cause the inflammation she is experiencing. Since Nadia has so many possible causes, it’s important we address each. We had been using just an over-the-counter supplement to kill off the yeast, called Candex, giving her one pill each Friday night for the past two weeks. Her doctor suggested, since Nadia didn’t have a negative reaction, meaning a regression in symptoms, that we should try to increase the dose. So last Friday and Saturday night I gave her a pill. And Monday morning she woke up saying she felt ‘wet’, refused pants, and cried she didn’t want to go to school.
I just feel so, so defeated. We worked so hard for months to get her back to school and over the ‘wet’ feeling. I’m so sad for her, knowing this cycle of good times and not so good times, could be our normal for years. I guess I’m hopefully that this is only a small setback. In addition to increasing the Candex dose, we had also stopped and decreased a few supplements, as the number were are giving her is getting out of hand. But for now, adding all the supplements back in and giving her Motrin round the clock to help reduce the inflammation. We also added in a binder to try to decrease the symptoms of the yeast dying off, basically activated charcoal. We’ll see I guess. All I can do is pray at this point. Maybe this is God telling me now isn’t the right time to open my coffee shop…
