Nadia is doing somewhat better. Not perfect, not back to ‘normal’, but better. I think it was right after I posted last, so about two weeks ago, we did a three-day course of a steroid and switched her antibiotic to something different. And started her on Prozac per the University’s recommendation. I’m not thrilled about that, but I’m willing to try it… So far she is calmer, less moody, sleeping better again, more focused, having fewer meltdowns, not crying that she’s wet, although still refusing pants and thus still home from preschool. I attribute all that to the steroid, as it’s too soon for the Prozac to really be working. And she is on a tiny dose, even for a child.
I have noticed a strange new rash on Nadia that seems to come and go randomly. I’m trying to keep track of medications and foods to see if I can figure out what is causing it… The naturopath told me it could be a sign of yeast die-off, as we are back to giving her Candex for the yeast overgrowth in her gut. She also had an external vaginal yeast infection which thankfully was cleared up with about two cups of apple cider vinegar added to a tub full of bath water.
The more I read about PANS and PANDAS and talk to other parents, the more scared I get. It seems like treatments need to be tailored to each individual child… so lots of trial and error, which takes forever. And of course, the setbacks every time the immune system is activated. I obviously google more than I should, but I came across these…
How convenient that Eric is a Urologist. I asked him if this could possibly be Nadia’s issue… And it’s hard to tell without doing the testing, although he doesn’t feel Nadia would handle the test well. He’s going to call the physical therapist who he sends his patients to and see what she can offer a child… I know the feeling wet is a classic PANS/PANDAS symptom, but she seems a lot better from the steroids, and yet this wet feeling remains… Maybe this is worth a try.
Oh, and Nadia got new glasses. Her prescription didn’t change, but I was sick of her complaining her current glasses hurt, even though we’d had them adjusted maybe 15 times, and I’m not kidding. These I think are more comfortable, although she still isn’t too keen on wearing them.
Speaking of her focus, she has been hard at work today drawing Elsa and Anna!