Vaccinated!

Well, I’m sort of vaccinated. I received the first of my two Pfizer COVID shots last week. A sore arm for a few days, and maybe a little tired the second day, but really no big deal.

It’s another Monday, and Nadia is still home with me. We are still struggling with her not wanting to wear pants or underwear. I had her try a pair of underwear on this morning… Nope she took them off, said it makes her feel ‘wet’ with them on. We did have our first physical therapy appointment last week. The therapist put some sort of electrodes on her upper legs, hips, and bottom. She said it appears that Nadia is tensing almost all the time, meaning when she was just sitting on the exam table, appearing relaxed, she was tense as if she was pushing to pee or poop. I have no idea how that is possible… We were given a list of a few exercises to do several times a day and told to try to make her go to the bathroom every few hours. Nadia lately hates going to the bathroom, so that’s going as well as you can expect! We have another PT appointment this Friday.

I have another follow-up with our naturopath tonight at 11:15pm my time, as she is in Australia. We’ve been slowly increasing some doses, so now we are up to one Candex tablet three times a week to kill yeast. And Nadia is tolerating the first of three bottles of herbs the provider sent us which we can do twice a week as prescribed. Yesterday I gave Nadia a small dose of the second bottle of herbs, and I didn’t notice any reaction, so maybe we can increase that to the maintenance level soon as well. The herbs are for a variety of Nadia’s problems, one being to remove mold from her body. I will say that Nadia seems a lot better lately (sleeping awesome too) except for this lingering wet feeling. It’s odd to me that this still remains, as in January we were able to get her over that… but now it’s back. So frustrating.

Tonight I also plan to chat with the naturopath about Nora. I’m not sure if Nora technically has any issues we can work on, but I want to ask. Nora is so so so picky, only has a few foods she likes, and none of them are healthy. Often she just looks sick to me with very dark circles under eyes. It’s tough to get Nora into school, like I have to almost push her in, the teachers sometimes escorting her in the building. I mean she goes, unlike Nadia, but it’s not easy to get her there. She also cries/whines a lot, somedays on and off most of the day. She doesn’t sleep well, clings to me often like Nadia… I don’t know. Just makes me wonder. I am sending in a urine sample of Nora’s for the organic acid and mold mycotoxins tests. Just starting with those two to see if they show anything before we investigate any further. I figure it can’t hurt to see what is all going on in Nora’s body too as I assume both the girls have been exposed to similar things over the years.

Ah, somehow it’s afternoon already and I still haven’t showered!

Fall

It’s officially fall. I think… Feels like fall here anyway, only 61F today. So certainly not cold, but definitely sweater weather!

I don’t have a lot of updates on Nadia’s health. Yesterday was her four-year well-child exam. And they confirmed my fear. She is losing weight, about 10% of her total body weight although wants to eat all the time. Even wakes in the middle of the night to eat. They ordered some blood tests, but I still need to take her for the blood draw. She got 2 vaccinations yesterday, plus the flu shot, so I felt like that was enough for one day… Otherwise her health is the same. She is still having lots and lots of meltdowns, lots of sensory processing issues, some OCD tendencies, still says she feels “wet” whenever she goes to the bathroom. She used to wipe and wipe and wipe, now she refuses to wipe at all, says that makes her feel like she has to go potty. Eric talked to his partners and they decided to try Ditropan. Per WebMD, Oxybutynin is used to treat certain bladder and urinary conditions (e.g., overactive bladder). It relaxes the muscles in the bladder to help decrease problems of urgency and frequent urination. Oxybutynin belongs to a class of drugs known as antispasmodics. So far I have noticed she asks to go to the bathroom less, which in itself is helpful, as every trip to the bathroom leads to a meltdown.

Aside from the weight loss, Nadia often complains large areas of her body itch, although we see no evidence of a rash or other irritant. And if you Google those two symptoms, scary stuff comes up. So for now, I’ll wait for the blood test results. We are also still waiting on the pediatric psychiatric referral. Our insurance denied our pediatrician’s request for us to be seen in Iowa City, but approved for us to be seen in Des Moines at Blank Children’s Hospital. I’m not as familiar, as we are in Iowa City all the time, but it will have to do. We will also see a developmental pediatrician there to screen for more general issues… whatever those are… I’m guessing Autism and such, which I don’t even want to think about right now.

Nadia still isn’t sleeping well. Which means the entire family isn’t sleeping well. I can get her to sleep, by rocking her. It’s now her only way of falling asleep. She does not like her bed, does not want to sleep in any bed, and certainly doesn’t want any covers if I can get her into bed, which is usually me laying her in bed after she falls asleep rocking. Getting Nadia to sleep though isn’t the biggest issue. It’s keeping her sleeping. She wakes several times a night, and almost always exactly at 4am. What the heck is with 4am?? And no matter how I’ve tried, she won’t put herself back to sleep. Although neither will Nora, so perhaps it’s a me issue. At this point I don’t care how any of us sleep, just that we sleep!

In other news, Nora seems to be adjusting to kindergarten well. Every morning she says she doesn’t want to go, but walks in without crying and seems excited to tell me about her day at pickup. Nadia is not adjusting to preschool well, big surprise. This morning she cried so hard I thought she might be hyperventilating. She says she doesn’t like the teachers. But I know the teachers, they are awesome, Nora even thought so… Nadia just doesn’t like being away from me, but to the extreme. I’m anxious for her referral appointment so we can talk about Nadia’s anxiety. Wonder where she gets it…

Life is slowing getting back into a routine. I’m back in Grove (Women’s Bible Study) on Tuesday mornings and MOPs (Moms of Preschools) on Thursday mornings. Nadia has speech and occupational therapy on Wednesday mornings, and both the girls have ballet on Thursday nights, although so far Nadia hasn’t been brave enough to attend. We’ll see, I’ll try again with her this week. I now have plenty of time to clean and organize the house, but God knows I’m awful at procrastinating. The laundry is staring at me right now… I emailed an interior designer that one of Eric’s partners used for their new home. I’m a little scared. An interior decorator sounds so… expensive. But I honestly have no clue where to begin on purchasing furniture for this house. The help would certainly be appreciated, if even for only a few main rooms. Below are pictures of Nadia’s bedroom curtains and bedding, my attempts at picking a paint color. I think I decided on Intimate White, which is number 8 on the paint samples. Oh, and the house we just moved from is going on the market TODAY, so let’s pray it sells quickly!

We went to a pumpkin patch on Saturday. Thankfully Nadia agreed to wear underwear, since she is stuck on dresses right now. And no coats. What am I going to do when it gets colder??? We had fun, although Nora was sad she couldn’t go down the giant slide all day.

And here are a few other random pictures I found on my phone, several taken by Nora.

Ah, somehow it’s 1:30 already and I’ve accomplished very little today. I guess I better start planning dinner!

Sisterly Love

Why is it, no matter where I am, no matter what I’m doing, I always feel I should be somewhere else?

When the girls wake in the morning I feel like I rush us to get ready and out the door. But for what? Just to daycare, when often my plans aren’t all that important or necessary. (Unless you consider adult interaction as important and necessary.) When I drop them off at daycare I feel guilty for allowing someone else precious time with my babies. But when I’m home with them I’m sometimes losing my freaking mind as they ask for the seventh different item for lunch, which they still don’t eat. And I miss them now that I have a few free moments after my haircut to myself. Maybe the whole mommy guilt thing is real, regardless of the situation, whether they are home with us, or happily playing at daycare…

Last night Nora complained her ear hurt. Last week she finished amoxicillin for an ear infection, which gave her a nasty rash, pictures below. We’re not convinced it was a true allergic reaction, rather probably more likely a maculopapular rash, but none the less they told us to quit the amoxicillin early, although just one day.

 

So back to last night… it was a Sunday evening. Of course only the ER was available, and since she was acting fine other than some complaints of ear pain I decided to wait until this morning.

This morning… the first thing Nora told me when she woke was that her right ear hurt. She was consistent with which ear at least. So back to the doctor we went. I originally had a Mom’s Club event scheduled this morning, which I was hosting, so that had to be rescheduled for later in the week. Of course. It’s not like I have a lot of events in my life, but it just so happens whenever the girls are sick I tend to have something planned. I call it Mom’s Law. Que the feeling of always needing to be where I’m not.

I’ve never seen a kid more happy and excited to see a doctor as Nora was this morning. She literally bounced into the office, happily got weighed and her height measured. (See pictures of happy Nora at doctor’s office below.) Nora was even excited for the blood pressure cuff and for her ears to be examined. And sure enough, an infection in her right ear this time. As a precaution amoxicillin wasn’t given, but rather Cefdinir. Hopefully she’s willing to take it, as the pharmacist told me its pretty nasty even when flavored. So that’s fun!

 

In other Nora news we got results back from her last visit with Dr. Bayer from Immunology at the University. And the news was good! Nora’s IgG was a bit down, but still in the normal range. And she made antibodies to 19 of the 23 strains in the last vaccine she received in December. Such a relief to receive all good news! And the best yet, she doesn’t need to see Dr. Bayer now for over a year!

And a bit of sisterly love to end with today!

 

Nora’s 3 Year Well Check

I just read the first post I wrote after Nora, well, baby A, was born. And now writing about her three-year check-up. I still get a little emotional. Maybe it’s this darn new anti-depressant!

Check-up went well! Probably a little hard to see the pictures below, but Nora was 28 lbs. 4 oz. which is 31% for weight, and 3 ft. which is 48% for height, both adjusted. This was our first visit for Nora with our new pediatrician since we moved, so we had a lot to discuss. This visit did remind me that Nora is due for more immunology blood tests… and I was so hoping they could be drawn at the MedLabs attached to our ped’s office. But oh no… Can’t be that easy! Apparently the University is the only lab around here that has the technology for these specialized, rare tests. I guess I’ll have to find another day for that super-fun (I can only assume) visit. No shots at this exam, as Nora is all caught up on vaccinations, thank God!

I’m really trying not to stress as much about Nora’s eating, or lack there of. Daycare continues to tell me she eats well there, which baffles me. She definitely has certain meals at home she will eat, and some she will only pick at. But she is gaining weight, although still with the help of Pediasure. I’m actually going to start buying the lower-calorie version, I think they are called Sidekicks. Maybe fewer calories in liquid will help her eat better. We shall see…

The picture above is quite telling… A year-year exam with a binkie. I know we need to ditch it. But oh God, I dread it. So much about parenting, and so often alone lately, feels so hard. I want something to be easy. Allowing her to continue with the binkie is so much easier on me, but I totally realize not better for her in the long-run. We’ll definitely be ditching the binkie on a week Eric is home!

Opinions

I got some slack about un-friending over differences of opinions… aka, vaccinations and flu shots and how they are necessary and safe. Here’s the thing people. You don’t get an opinion when it comes to science and proven research. Vaccinations are safe. Period. Just like the earth is round. I’m all about having an opinion. If you love Trump, great, be my friend, read my blog, lets hang out. I don’t care for him. But you get your opinion on politics. But science and medicine, proven research… no. End of story. You can’t argue some things. You don’t want to vaccinate… stay the hell away from me and don’t be spreading your incorrect information where I can hear it.

Now, about those ham balls… I personally really liked them… Nora wouldn’t try them. Nadia put some in her mouth and then proceeded to pull it back out and hand it to Kona, our doggie. So there you have it. I’ll try again…

I was thinking of adding some recipes to my blog, a new menu item so you can easily find some of my favorites. Please know, none of these will be my own, all gathered from other sources, and I’ll try to give credit to the originator 🙂 Stay turned!