It’s officially fall. I think… Feels like fall here anyway, only 61F today. So certainly not cold, but definitely sweater weather!
I don’t have a lot of updates on Nadia’s health. Yesterday was her four-year well-child exam. And they confirmed my fear. She is losing weight, about 10% of her total body weight although wants to eat all the time. Even wakes in the middle of the night to eat. They ordered some blood tests, but I still need to take her for the blood draw. She got 2 vaccinations yesterday, plus the flu shot, so I felt like that was enough for one day… Otherwise her health is the same. She is still having lots and lots of meltdowns, lots of sensory processing issues, some OCD tendencies, still says she feels “wet” whenever she goes to the bathroom. She used to wipe and wipe and wipe, now she refuses to wipe at all, says that makes her feel like she has to go potty. Eric talked to his partners and they decided to try Ditropan. Per WebMD, Oxybutynin is used to treat certain bladder and urinary conditions (e.g., overactive bladder). It relaxes the muscles in the bladder to help decrease problems of urgency and frequent urination. Oxybutynin belongs to a class of drugs known as antispasmodics. So far I have noticed she asks to go to the bathroom less, which in itself is helpful, as every trip to the bathroom leads to a meltdown.
Aside from the weight loss, Nadia often complains large areas of her body itch, although we see no evidence of a rash or other irritant. And if you Google those two symptoms, scary stuff comes up. So for now, I’ll wait for the blood test results. We are also still waiting on the pediatric psychiatric referral. Our insurance denied our pediatrician’s request for us to be seen in Iowa City, but approved for us to be seen in Des Moines at Blank Children’s Hospital. I’m not as familiar, as we are in Iowa City all the time, but it will have to do. We will also see a developmental pediatrician there to screen for more general issues… whatever those are… I’m guessing Autism and such, which I don’t even want to think about right now.
Nadia still isn’t sleeping well. Which means the entire family isn’t sleeping well. I can get her to sleep, by rocking her. It’s now her only way of falling asleep. She does not like her bed, does not want to sleep in any bed, and certainly doesn’t want any covers if I can get her into bed, which is usually me laying her in bed after she falls asleep rocking. Getting Nadia to sleep though isn’t the biggest issue. It’s keeping her sleeping. She wakes several times a night, and almost always exactly at 4am. What the heck is with 4am?? And no matter how I’ve tried, she won’t put herself back to sleep. Although neither will Nora, so perhaps it’s a me issue. At this point I don’t care how any of us sleep, just that we sleep!
In other news, Nora seems to be adjusting to kindergarten well. Every morning she says she doesn’t want to go, but walks in without crying and seems excited to tell me about her day at pickup. Nadia is not adjusting to preschool well, big surprise. This morning she cried so hard I thought she might be hyperventilating. She says she doesn’t like the teachers. But I know the teachers, they are awesome, Nora even thought so… Nadia just doesn’t like being away from me, but to the extreme. I’m anxious for her referral appointment so we can talk about Nadia’s anxiety. Wonder where she gets it…
Life is slowing getting back into a routine. I’m back in Grove (Women’s Bible Study) on Tuesday mornings and MOPs (Moms of Preschools) on Thursday mornings. Nadia has speech and occupational therapy on Wednesday mornings, and both the girls have ballet on Thursday nights, although so far Nadia hasn’t been brave enough to attend. We’ll see, I’ll try again with her this week. I now have plenty of time to clean and organize the house, but God knows I’m awful at procrastinating. The laundry is staring at me right now… I emailed an interior designer that one of Eric’s partners used for their new home. I’m a little scared. An interior decorator sounds so… expensive. But I honestly have no clue where to begin on purchasing furniture for this house. The help would certainly be appreciated, if even for only a few main rooms. Below are pictures of Nadia’s bedroom curtains and bedding, my attempts at picking a paint color. I think I decided on Intimate White, which is number 8 on the paint samples. Oh, and the house we just moved from is going on the market TODAY, so let’s pray it sells quickly!
We went to a pumpkin patch on Saturday. Thankfully Nadia agreed to wear underwear, since she is stuck on dresses right now. And no coats. What am I going to do when it gets colder??? We had fun, although Nora was sad she couldn’t go down the giant slide all day.
And here are a few other random pictures I found on my phone, several taken by Nora.
Ah, somehow it’s 1:30 already and I’ve accomplished very little today. I guess I better start planning dinner!